4
GAY PEOPLE'S CHRONICLE SEPTEMBER 3, 1993
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OF GREATER CLEVELAND
Scientists, and AIDS activists
meet at secret 'think tank'
Continued from Page 1
to do something in this area and... it's looking for something to get behind."
The gathering, dubbed "Future Directions in AIDS Research: Toward A Cure," convened July 30 and 31 at the University of Wisconsin in Madison. The event was closed to news media because, Delaney said, Project Inform's experience has been that this "is almost the only way you can get the initial work done on controversial subjects."
"When a meeting is open, you simply don't get candor in a public setting," he said. Federal government officials attending the secret "think tank" included Kristine Gebbie, President Clinton's newly-appointed AIDS "czar," Dr. David Kessler, head of the U.S. Food and Drug Administration; and Dr. June Osborn, who chairs the National Commission on AIDS.
Among the top scientists who participated were Dr. Anthony Fauci, head of the National Institute of Allergy and Infectious Diseases; Dr. Samuel Broder, head of the National Cancer Institute (NCI); and Dr. Robert Gallo, also of NCI.
Also present were representatives of the drug companies Merck and Pfizer, as well as a number of AIDS advocates, including Derek Hodel of AIDS Action Council and playwright-AIDS activist Larry Kramer.
"The meeting was exceedingly important," Kramer said. "It was the first time that all these people sat down in one room and brainstormed... It's really quite shocking that this wasn't done from day one."
According to the organizers of the meeting, the first day was spent reviewing the current state of AIDS research, and the second day was used to formulate a list of nine basic consensus statements.
The participants agreed that AIDS research must become a concerted and coordinated effort between drug companies, scientists, government officials, and advocates.
They called for better communication between scientists and said drug companies must overcome proprietary interests and trade secrecy barriers and work better together, particularly when contributing to
clinical trials that test combinations of drugs.
More resources should be devoted to the AIDS research effort, particularly innovative and underfunded research, the participants agreed. They called for a more coordinated effort to raise and distribute AIDS research funds, and for more programs and funding outside the scope of the National Institutes of Health.
Specifically, Delaney said, the participants discussed the formation of a national organization, similar to the American Cancer Society, that would coordinate private fund-raising for AIDS research.
The federal government, they said, must offer greater incentives to drug companies to partake in AIDS research. Increased efforts must also be made to prevent important research from being halted due to lack of resources or interest, and to ensure that scientific findings are put into practice.
And, the participants said, the Clinton administration and Congress must take a leadership role in implementing the changes they will recommend.
Hodel of AIDS Action Council said the participants did not specifically discuss a long-time demand from AIDS activists that the White House establish a "Manhattan Project" that would gather key scientists to answer specific questions about HIV/AIDS.
"The whole question of a Manhattan Project is always in the air, particularly at a meeting like this," he said, "but there certainly wasn't a concerted proposal on the table."
"One could say that [a Manhattan Project] is the primary thing on the table, but it's a question of what that means," Delaney added. "We're committed to some kind of intensified, refocused effort. Exactly what form that takes will be a matter of consensus."
The participants will now work to formulate concrete proposals, Delaney said. They have scheduled a follow-up meeting, to be held in late September at Harvard University in Cambridge, Mass. At that gathering, they plan to discuss what specific recommendations they will make to the Clinton administration.
Reprinted with permission from the Washington Blade.
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